Boxes

In the back of my mind there are a bunch of boxes. Beat up and dusty they sit in the corner out of the path of any direct light. Most of them hold nothing but air, the memories they once held now scattered to the winds in a million particles of dust fine glass. Corroded by the years and lack of attention they faded into nothingness without even a whisper to herald their passing. Some are full to the brim with the shining past, bits of happiness and comfort snatched here and there and filed away to peruse at a later date. Flickering lights of conversation long neglected that still hold out hope that one day I will open them up and see what they hold. A few, hidden at the very bottom of the pile, are dark and forbid careless tampering. Locked tight to the world they contain those things I have seen and lived and survived that lurk at the edges of my mind and make up the glue that holds this otherwise fragile and gossamer child together at the seams.

Rarely do I venture there, and bring forth one of those boxes. Rarely do I linger in the past where they live, wallowing in the mud of who I was, and who they were, and the choices we both made. I hardly even see them anymore hidden in the dusty mire where they have lain for so long, long ago cast from conscious thought to take up residence in nightmares and terror. These are the moments I would rather forget but cannot, jagged pieces of glass in my mind that could rend and tear if I spent too much time wallowing in their presence. Yet I know, in my heart, that these same bits of my past with such power to devastate me also fuel my strength and that to lock them away forever cheapens the horror and terror I felt when I was trapped in the moment. The tiny scrapes and cuts they cause allow the poison that could easily consume me to bleed from my veins.

I have a great deal of affection for those darker places in my mind, those corners lost deep in shadow where fear and hatred and misery lurk in patient silence, waiting for the opportunity to pounce. Most people shy away from the very edges of their humanity, never seeking to know what lies buried beneath that heap of lies we learn to tell ourselves in an effort to hide all that weakness from the prying eyes of others. In the pool of my own sweat and tears mingled with the blood of my pride and the dust at my feet I can see forever reflected back at me. These moments make me feel not less, but more and stronger each time I pull myself from the ashes of the fire to stand reborn and stretch my wings to the glory of their new span. It is only when held up in contrast to these moments of misery that I can witness the real value of the light and comfort that floods my life on a day to day basis. It’s only by carefully unlocking those boxes and rifling through their contents that I can achieve greater understanding. What I’ve done is such a huge part of who I am.

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“That one” she whispered, and he reached for one hidden back in the shadows of the already dim room. “No not that one, the one beside it” her voice got quieter as his hands neared the source of her anticipation. Wrapping it carefully in his hands he cradled it out of its place in the dusty past and lowered it carefully to the floor between them. She could barely look at it, knowing what it held, and tears started to creep down her cheeks, leaving tracks in the dust that had settled there in her search to unearth this long hidden piece of her past. With trembling hands she lifted the chain from around her neck and the key that dangled on the end danced in the small light offered by the one small lamp as she dropped it into his outstretched palm.

At the bottom

Every once in awhile I have to spend some time at the bottom of the well. Its like my body needs time to remember what its like to be sad so it can appreciate the good times and decides to stop producing those happy drugs altogether and I’m left in a rut I just don’t know how to get out of. I can’t sleep, I can’t think, I can’t communicate with any degree of effectiveness. All I can do is do my very best to live through it and hope that it will be over soon, that I can go to sleep one night and wake up the next day to a brighter world.

I think the hardest part of it is the effect it has on those I care most about. I don’t like being a burden but it’s hard to be anything else to those I can’t hide this from. The guilt I feel for having a negative impact on their lives at these times only compounds the way I feel. I feel like I should crawl into a hole somewhere and hide away from everyone until it passes but I can’t, and they see, and they worry, and the whole thing goes around in a big circle. I can accept what it does to me, I have a much harder time accepting what it does to them.

I feel like I should have better control, like if I could just look at this from the right angle I could make it do away, so I poke and I prod and I try to make it all make sense. Emotions rarely make sense, I don’t even know why I try. I know I should just ride it out, cry when I need to, sleep when I can, but that’s so much harder to do when there are other people to take into consideration. I’m stuck in a struggle between what I need to do to feel better, and what I need to do to keep them happy, and I really have no control over the outcome. I can try to smother it down but it will all build up in the long run and eventually overflow, eventually they will see, I can only keep it hidden so long and the longer I do the worse it is in the long run.

I know it will pass, I just wish it would pass faster so I can get back to living my life.

Troubles Accepting

I almost feel like I need to take a step back here. I know that’s not possible, one can’t just step back from their life and look at their experiences and perceptions from another angle. I’m wholly overwhelmed by this look inside myself and the insights this discovery has given me about my past. In little pieces it all seems to make sense, but when I try and condense it into a bigger picture of the way it makes me feel the edges start crumbling and I am left with nothing but dust once again.

I wanted to provide a guiding light through this, I wanted to light my own way and hoped to show others the path as well. I thought I could accept Asperger’s into my life and continue forward as I always have, one day at a time. It isn’t as easy as I thought and I’ve discovered its much more deeply woven into the core of who I am than I would have thought possible. I never would have guessed in a million years that I have Autism, and reality can be bone crunchingly savage when it hits you out of the blue that way.

In the wake of this struggle, this blog has turned into an expression of the difficulties I’m having in coming to terms with myself, and where I fit into this world that I have fought so hard to stay afloat in. I’m questioning everything about who I am right now and while I don’t think that’s entirely healthy it hasn’t killed me yet and I wouldn’t know how to stop if I wanted to. Perhaps through this baring of my soul I can reach some understanding. A little less confusion in my life would be stellar.

Perception

Some will seek the tangles in the depths, only to be trapped and lost in a cage of their own interpretations. They close the doors to their own minds, slamming them shut one after another in an attempt to hold together their fragile and shattering sense of self. The cracks that mar the surface ebb land flow like the tides, for sometimes these feeble attempts at enlightenment form mud that seeps into the cracks and fills them. But the reality of truth flows past these shallow dams, they loosen the bits of debris that tries to lock itself into feeble wisdom.

If only these eyes could see, if only the walls that contain this all could be torn down one brick at a time. If only progression could force time back in its wheel, then the voices of things once uttered in distress could be trampled under the heavy tread of common sense. But alas, time marches on and the voices that once echoed so soundlessly from wall to wall, fade in the distance between then and now. Who remembers the whispered tales so forgotten in their own past they cannot see the light of the present shining bright into their imagination, beckoning and tempting of things that could lead the soul to peace and the mind to clarity?

Feeble winds and feeble tales spread slow and tend to whimper with dying breaths, for without progress the wings could not unfurl, and the butterfly would never soar, forever doomed to the path of the earth, chained by the bonds of altered evolution. Stagnancies breeds disease, and this disease that burns fierce along the pillars of the bridges casts its shadows long across the path that leads onward, forward, one step at a time.

The arms of comrades fallen by the wayside, point the way through the mires that try to grasp and claw, draw them into its heart where it feeds on those who call themselves the truth. Gaping rents in the understanding of those too blinded by base achievement to grasp the difficulties within their twisted hands. Psychic vampires who sneak unwary through the triumphs of others, seeking to pick and prod at the delicate fibers that hold the sleeping eyes of dreamers as they wander from room to room.

My spirit sings at the cusp of the deepest pit, obsidian darkness and an echo that fans out forever, like a stone dropped from far too high to ever pierce the delicate skin of the oceans that abound. Laughter fills the emptiness of the blackened rooms behind the closed doors. For those without eyes to see, or bridges to traverse the severity of the landscape, shall trip and stumble to the knees of a child when faced with the certainty of their own mistakes. Someday the slap shall send them reeling, and the crystal palaces built so carefully, brick after brick, in careful progression, will shatter and fall before the eyes of the disbelieving.

Progression relies on the imperfections of humanity, for with nothing to improve on how could we progress. And yet there will always be some who can refuse to see even the plainest of colors as they pass before their eyes. Some who will always see the calming blue that descends from above as the crimson red that surrounds their defenses. My song mourns these lost souls, who have forgotten how to forgive themselves all transgressions that they might learn and grow and seek the metamorphosis that allows them to soar.

Indigo blood sinks deep into the soil that holds captured the feet of those who wander too far down the path of self righteousness, those who would dare scratch insults in the dust in vain attempts to be granted company in the face of their own denied misery. Grant them succor, and their claws rend and tear at the pages that hold the destiny of truth before their very sight. Grant them solace and they cry foul and dismay, that one would dare offer sanctuary in the depths of their own endless drive towards totality.

Let the angels be warned, that the demons that hide within the hearts of those too important to care for the opinions of others exist in the closets and under the beds. Intolerance is the nightmare that lurks in the shadows and causes fear in the night. Each time the evening descends, another voice fades from the echoes, another is added to the chaos, another twists itself into knots with its own failed logic. In all cases, at the end of all tales, reality and truth will prevail, for that is the path of progression, and there is no denying that.

Hiding Within

I haven’t always been reclusive. I went to regular school like any other kid and went on to college. I took my kid to school and went to my full time job every day. I went out every night and had lots of friends. To the outside world I seemed like your average young mother doing her best to get by in life, but I was screaming on the inside. It’s hard to cope with feeling this way when you have no idea what’s going on, or why you are struggling so much with things everyone else can do with ease. I understand now that its common with Asperger’s to feel this way, but back then I slowly withdrew a piece at a time trying to gain some peace and clarity in my life, and some understanding of why it all seemed so different for me.

The times I want to leave my cozy little den have dropped dramatically in the last few years. I don’t think the time I spend alone is a new need, just the further recognition of one I’ve always had. I can’t focus on anything when there are other people around, so I stay in my apartment by myself most of the time. It’s getting to the point where even that isn’t enough. Cabin fever gets the best of me because I love to be outside, but living in the city overwhelms me to the point where I have no choice but to stay indoors most of the time. Even a trip to the nearby park seems like an impossible journey when you are worried about who you might run into. The occasional dinner, family function, or errand I manage these days leave me over stimulated and exhausted. Going to the grocery store is a nightmare of lights and sounds and people that I can’t avoid because I only eat certain brands of certain foods. All I want to do when I’m done is go home and go to bed. Just the idea of going out into the hall of my building can be too much to bear sometimes.

I want to live in the woods. I want trees, and running water, and rock as far as the eye can see. I want my own little room in the attic where I can hang things from the ceiling, and paint on the walls, and fill one end with pillows for curling up and reading in. I want to be able to step outside my door without being immediately assaulted by the traffic, and the lights, and the hordes of people going this way and that. I want to be able to see the stars at night, and to sit by the fire quietly thinking. I want to live where the world can’t find me unless I let them.

Its not that I don’t want any contact with people at all, on the contrary, I am fascinated by people and desire to connect with them, I just struggle with face to face interaction and social etiquette. The few people I do interact with on a social level, including my boyfriend, are either on the spectrum or highly open minded people who can see past these weaknesses. Despite these difficulties I have found a way to connect with a broader slice of the world at large through the internet. I have found a medium where eye contact doesn’t matter and everyone is free to pursue what brings them peace and happiness, where people don’t have to ignore my tapping feet and worried expression to see the truth in my words.

Some day when my situation is a little better I can move from this city and find my little piece of heaven in the woods. Until then I will bide my time here in this apartment, adventuring out into the wide bustling world only when I have to. Those who know me will shake their heads and forgive me, just another way that Alei is different from the rest. Those who understand me will recognize that it’s what I need to do and love me all the more. The rest of the world will pass by my doorstep and never even know I’m here. Its better that way.

The Missing Voice

I’ve been doing a lot of research these last few weeks. I have a driving need to find out exactly where Autism fits into my life so I can decide where to go from here. I’m shocked at what I have found. In mainstream coverage there is one thing significantly lacking. Where is the voice of Autism? How can people who have no idea what it is like to have Autism claim to know all the answers about how it affects your life and what you should do to “cure” it? Why are we listening to the NT parents of Autistic children and not listening to the adults who have lived with this their whole life? Those same adults who were once children with Autism.

I see a general sense of panic happening over the issue of Autism, and I don’t really see the point in that. I’m all about getting the stats out there but this tendency to react with horror and disbelief is a little childish in the face of the facts. An average of 1 in 150 children are on the Autistic Spectrum, and I agree these numbers are staggering, but they are not new despite their relatively recent appearance. If 1 in 150 children have Autism then 1 in 150 adults have Autism. You grew up beside us, the quiet kid at the back or the class clown. You worked beside us and maybe once in awhile wondered where our minds were wandering off to. You sat beside us in the coffee shop and wondered what book we were reading. You sat beside us in the movie theatre and didn’t even know we were there. Autism isn’t new, people panicking about it is.

This rush to find a cure frustrates me. How many Autistic people did they talk to before they decided we need a cure and how much of this push is coming from parents who just want a “normal” child. I’m amazed that people who consider themselves intelligent and rational are buying into and contributing to this hype. I’m even more amazed that they perceive this as the whole truth when it is so blatantly half of the story. Digging deeper the real story is there, the endless accounts of people who have lived with this their whole life. Acceptance of who they are. An overall sense of confusion about why the world can’t accept them as they are as well. People who know that like everything else in life it isn’t all bad, that the upsides to being Autistic more than balance it out. People who wouldn’t want to be NT for all the money in the world. Oddly enough, I haven’t found anyone with Autism screaming for a cure.

Normal vs Sane

What is normal but a figment of their warped imaginations? It doesn’t exist in my world, never has, despite the endless times it’s been thrown at my feet. They tried to throw it at me but it never stuck, how could I be something that doesn’t exist. I may as well try to be a unicorn or a dragon for all the good it would do me. I can’t be anything other than what I am, and try as I might I will never master the magic of transformation. I tried and I failed before I learned how to mimic their cries and let them come flocking to what they wanted to see, I’ve forgotten now how to do even that. Not that I care.

I refuse to pretend, I’ve spent my life pretending and I don’t think it’s too much to ask for my loved ones to accept me for who I am. I know it isn’t for most, the ones who already knew about my world and love me and would never ask me to change, but I worry about the rest. Will the social stigma Autism get the best of them? Will they crumble beneath the pressure of the media to find a cure? Will they stop seeing me for the person I am in the face of what they see as a disease? Or will they open their minds and their hearts and see the truth about the girl standing in front of them and all she has to offer? I don’t know, I can’t predict how they will react, I don’t understand them at all. It seems so easy to me. Stop trying to change the things you have no control over and just accept reality into your life.

I’m not hurting anyone, hiding away in my little world. I don’t pose any threat by remaining peripheral from all those but the few who will meet me half way. I could wish for the ability to expand this close circle, I could visualize it in my mind, but still I would open my eyes to find that the power is not mine to make their choices and all that remains are my whispers and the hope that they will hear them. One little voice saying that trying to be normal is counterproductive to remaining sane. You may as well try being a unicorn, or a dragon, for all the good it will do you.

Altered Reality

I sit and wonder impossible things. Impossible questions with impossible answers that are impossible to find. It’s no wonder I feel like I’m running in circles, panting and heaving with each labored step to get where? Nowhere except right back here where I started, staring at my own bitter reflection, that warped perception with no face that I embrace and hold dear. It shatters under the pressure of so many hands tugging it this way and that towards their own definitions. No care for the not so fragile doll, suddenly porcelain under their scrutiny, searching for flaws in the already crackled veneer of what they taught her to be. I don’t understand how it can be easier to live on their side of the mirror.

Clarity they say, and common sense, naught but hurled remnants of ages long past that drift to the bottom of the muddy waters that surround them, social conditioning that has no basis in reality. Not clear, clarifying, but crimson with the tears of bleeding hearts and opaque to muddle and blind, if only they could see. I can’t save them from passionate denial, when all I have to offer is words, and to open my mouth I risk the flood pouring forth, to sear them where they stand for their damning accusations of reality and misguided fantasy. Even now I fail to understand the world beyond the glass, its perceptions seems so warped it overwhelms me. I’m a catalyst with no voice beyond a whisper trapped between here and there. Nothing but these groups of letters that fall from my fingertips.

I seem to exist in a world they can’t even imagine, at the edges of their reality, their existence, where they glide endlessly through life on magic carpets fueled by the dishonest truth, kept company by a golem in my likeness, though I long ago fled the safe womb of that chrysalis. I fight my way through rabid jungle that seems so calm and serene from their lofty perch, where the wind barely graces the tops of the trees with its gentle kiss. The reality of who I am exists only in their dreams, where they can cast hideous denials back in the face of my defiant screams, and find succor in their heated delusions that I am like them at all.

I am not who they expect, not who they see when they deign to cast enlightened eyes my way. The reality flows just beneath that brittle veneer, one that could not hold under the gaze of a closer look, a blessing then that they choose not to, their cool apathy the glue that holds its cracked and worn fragments as my disguise. Deaf eyes and blinded ears. Where, I wonder, did they learn not to trust their senses. Common sense in the face of the truth that it is neither common nor sensible at all. The intensity of their lives makes my head swim and no matter how strong you are, treading water is always a losing battle. Any wonder that I choose to exist in my world rather than theirs; they make the same choice every day.

Sometimes...

The unexplainable happens, and you are struck by a force so strong you are left reeling in its wake, hoping you survive the impact.

The soul makes a leap before the mind is ready, and the confusion this creates blows apart some of the things you thought you understood.

The subconscious wakes up, and starts effecting changes in your life, unbeknownst to the conscious mind.

Dreams aren’t really dreams at all, but silver threads that guide you to the healing that you need, tangible only in that space between sleep and wake.

The bits of evil that lurk in the shadows of your spirit are the only things keeping you sane, and forcing your heart to keep beating.

Its harder to embrace hope than defeat, happiness than sadness, comfort than pain.

Even though all the signs are pointing in one direction, the only way to get where you are going is to go the other way.

The things that hurt the most are the things that are worth the most.

Every time you answer a question it opens a door, and behind every door is a room full of questions.

State of Mind

I have to be honest; I can’t do this any other way. I have to admit that I’m frightened of the shadows that lurk at the edges of understanding and acceptance where it was once my solace to hide and wait and watch. Now I’ve hurled myself from the darkness and into the blinding light of the fire where all the weaknesses I fought to smother for so long can be picked apart and scrutinized in the hopes that reassembled these tiny fragments can be stronger as a whole. I feel like a blind man who has learned to see, still fearful of stumbling and falling over the stone blocks that are scattered here and there that I now know are simply features in my garden and not the traps I once thought them to be. I can see them, I know what they are, and yet I can’t help but be wary that another will spring up that I have never seen. There are so many things I couldn’t see before now.

I am at a crossroads, and yet there are no other roads but for the direction I am already traveling. I started on this path a long time ago, and I have gone too far to retrace my steps now to become something other than what I am, a frustrated little girl who is locked in a struggle between wanting her turn for show and tell and fearing the class will laugh when she shares what she has found. Pockets full of sparkling pebbles and bits of beach glass, marbles and pennies, pinecones and buttons; she sits quietly at the back of the class endlessly moving them between her fingertips, hoping against hope that her name isn’t called. Hoping against hope that it is so that maybe she can think about other things and find the rest of the pieces she needs to put herself back together.


My desire to share of myself runs deep and contrary to my inability to take part in this sharing with others. Locked behind this screen of thorns there is a measure of safety, and yet what am I really sharing of myself without that human connection, I may as well be talking to a mirror. I wander through this amazing garden of ideas and thoughts that has always existed in my mind attempting to plot its twists and turns in the hopes that someday I can make the world understand, and yet somehow I know they never will. I can’t shake it, this desire to communicate; it’s the bane of my existence. Few and far between are the people who understand enough to spend time in my world and yet that driving need compels me to throw open the doors to one part or another of my soul and invite the world in, for better or worse. Most end up lost and bewildered in a very short time. Some few understand and respond, and for these I am truly grateful because every single person who understands makes me feel a little less alone.

I have accepted this into my life, but one detail remains, and there it sits again at one detail that locks my mind and my heart into this eternal struggle to define what matters. One person’s opinion and faith in my ability to see inside my own mind in a way that no other could fathom. One heartstring stretched to its limit and the rise and fall of unconditional love left hanging in the balance. One person, what matters their opinion in the grand scheme of things. Nothing, and yet everything when their acceptance is all you have ever wanted. Without it I have no idea how to move on from here.