I have to be honest; I can’t do this any other way. I have to admit that I’m frightened of the shadows that lurk at the edges of understanding and acceptance where it was once my solace to hide and wait and watch. Now I’ve hurled myself from the darkness and into the blinding light of the fire where all the weaknesses I fought to smother for so long can be picked apart and scrutinized in the hopes that reassembled these tiny fragments can be stronger as a whole. I feel like a blind man who has learned to see, still fearful of stumbling and falling over the stone blocks that are scattered here and there that I now know are simply features in my garden and not the traps I once thought them to be. I can see them, I know what they are, and yet I can’t help but be wary that another will spring up that I have never seen. There are so many things I couldn’t see before now.
I am at a crossroads, and yet there are no other roads but for the direction I am already traveling. I started on this path a long time ago, and I have gone too far to retrace my steps now to become something other than what I am, a frustrated little girl who is locked in a struggle between wanting her turn for show and tell and fearing the class will laugh when she shares what she has found. Pockets full of sparkling pebbles and bits of beach glass, marbles and pennies, pinecones and buttons; she sits quietly at the back of the class endlessly moving them between her fingertips, hoping against hope that her name isn’t called. Hoping against hope that it is so that maybe she can think about other things and find the rest of the pieces she needs to put herself back together.
My desire to share of myself runs deep and contrary to my inability to take part in this sharing with others. Locked behind this screen of thorns there is a measure of safety, and yet what am I really sharing of myself without that human connection, I may as well be talking to a mirror. I wander through this amazing garden of ideas and thoughts that has always existed in my mind attempting to plot its twists and turns in the hopes that someday I can make the world understand, and yet somehow I know they never will. I can’t shake it, this desire to communicate; it’s the bane of my existence. Few and far between are the people who understand enough to spend time in my world and yet that driving need compels me to throw open the doors to one part or another of my soul and invite the world in, for better or worse. Most end up lost and bewildered in a very short time. Some few understand and respond, and for these I am truly grateful because every single person who understands makes me feel a little less alone.
I have accepted this into my life, but one detail remains, and there it sits again at one detail that locks my mind and my heart into this eternal struggle to define what matters. One person’s opinion and faith in my ability to see inside my own mind in a way that no other could fathom. One heartstring stretched to its limit and the rise and fall of unconditional love left hanging in the balance. One person, what matters their opinion in the grand scheme of things. Nothing, and yet everything when their acceptance is all you have ever wanted. Without it I have no idea how to move on from here.
Monday, November 19, 2007
State of Mind
Posted by
alei
at
3:24 PM
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Labels: acceptance, Adult, alone, asperger's, Aspergers, communicate, communication, connection, coping, creative, my world, reaching out, scrutiny, state of mind
Emotional Dichotomy
I have, through the years, been described as both over emotional and cold hearted, the former due to my tendency to melt down when under pressure to explain and burst into tears, and the latter because of my apparent inability to empathize with others. The fact of the matter is that emotion doesn’t affect me in the same way as it affects most. I can’t ever recall being a little bit happy, or a little bit sad, or a little bit angry. Its not that I feel these things intensely all the time, but rather that I usually don’t feel them at all.
At times I’m sure I have a better grip on reality than most NT’s, unblinded by all those little emotions that seem to dictate their every move. They seem like children to me in so many ways, unable to cope with reality in the face of the way it makes them feel. I’m not saying this to be insulting, this is simply my perspective and although that can sometimes seem harsh and critical I am just as critical of my own capabilities and weaknesses.
Of course this means that I’m not as “happy” with my life as I have led people to believe, but if you tell people that then they assume you must be unhappy so I used the words they understood. Most of the time I am neither. Most of the time I am numb. Most of the time people also interpret that as unhappy. The snake is eating its own bloody tail trying to explain it.
I have no problem with being this way, I can’t for the life of me figure out why anyone would choose to feel that intensely all the time, it seems to get in the way of common sense so often. Even when emotion reaches a state that I feel it there is a core in me that screams that feeling this way is unrealistic, that I am assigning false value to things that have no meaning in the long run. When I am angry I know that it is serving no purpose, that calm thought could solve a problem that yelling will only exacerbate. When I am grieving for what I have lost I know that that changes nothing and it is best to move forward appreciating what I have. When I am sad I know that this too shall pass, and that acceptance helps me to move on. It’s intense but its brief and once I have moved past it I’m not concerned with it anymore and its time to get back to business. I guess that’s one benefit to living life in the moment.
Posted by
alei
at
11:23 AM
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Labels: acceptance, Adult, angry, Aspergers, calm, dichotomy, emotion, happy, numb, one day at a time, reality, sad
Mini Documentary
As much as I like to talk about the way having Asperger's has affected my life, I think its just as important to hear other points of view. This is a very insightful and well put together little documentary.
http://www.youtube.com/watch?v=WAfWfsop1e0&feature=related
Posted by
alei
at
10:43 AM
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Labels: acceptance, Adult, Aspergers, documentary, video
Saturday, November 17, 2007
Out of the darkness
I’ve been struggling for as long as I can remember to explain the world the way I see it. It’s not as easy as it might sound. For a long time I couldn’t figure out why no one understood the things I was trying to explain and so I learned to hide it for fear of being told it was all in my imagination. I would write on scraps of paper, tiny tidbits about the way things looked and felt to me, and hide them inside books and up inside my closet. When I did venture to speak of the way I was feeling I generally found that people did not understand. The frustration of trying to put the pieces together in a way that they could fathom would overwhelm me, and before too long I would be bawling my eyes out. This made me seem over emotional, and granted I was at that exact moment, but it was always a symptom and never the problem. I knew this, but I didn’t know how to explain it to them.
I’m not bitter any more. I was for a long time, but with the knowledge I now possess I can’t have expected them to have any idea what they were dealing with. Aspergers had barely even hit any ones radar and by the time I started exhibiting signs I had learned how to fake it in most situations. The focus has always been on diagnosing the young, and less care was taken with adults; because we have good language skills, and are often highly intelligent it can be difficult to spot. I’m very good at faking it when I have to, I just prefer not to because of the amount of stress it causes me.
There is a common misconception that because people with Aspergers don’t process social cues on an instinctual level that we are not good at reading people. I am sure there are people with Aspergers who struggle with this, but when I am outside of the situation I am exceptionally good at it. I’ve spent my whole life studying people and the way they interact in an effort to be more like them. I have a huge mental database of people I know, situations, and reactions that I can cross reference with relative ease when I am calm and relaxed. There is no pressure when I am a bystander and if my perception is wrong, no risk of reacting in the wrong way. Put me in a situation where I have to take part and all of a sudden it’s a race against the clock to interpret the social cues, and missing just one can spell disaster. The stress of trying to keep up can overwhelm me and cause a short circuit in my database and then I may as well be a fish out of water. The more aggravated the other person gets about my inability to communicate, the worse this gets, until I am in full meltdown mode. I worry about this all the time, its easier to just stay home.
So I do. I stay home and I fixate and I try not to explain myself to too many people. Well at least I used too. With the addition of one new word to my personal dictionary I have discovered the ability to share myself, all of myself. I have found a way to put into words my different perspective of this world we all share. I have found a place where the child in me can roam free in my garden of thoughts, and where the adult can sit and ponder the mysteries of life. I have found a way to throw open the gates and let others pass through the thorny vines that have grown so long and so fierce about this gilded cage. I have found the freedom to be me. Out of the darkness I created for myself, the perceived safety of my imagination, and into the light. The fires have been stoked; all that’s left to do is explore the shadows in the safety of its glow.
Posted by
alei
at
4:33 PM
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Labels: acceptance, Adult, Aspergers, communication, creative, faking, social cues, writing
