Words

Words are all I have, especially at times like there when nothing else seems to make any sense. 26 letters strung together in endless combinations that paint a picture of who I am, and what I offer, and where I fit into this confusing world. My tone betrays me, my eyes lie, my face denies the truth, but my words never do. They march on across these pages with nary a care for the tears that might roll down my face or the furrowed brow that signals irritation. Here my words carry more weight than the way I say them. Here it all makes sense.

As unpredictable as I find the world, I know that I am the same. Taught through social conditioning to search for the hidden meaning behind the things people say, the delivery has come to mean more than the words themselves, and delivery is something I fall pathetically short at. In a society where body language and social cues are such an integral part of the way we interpret each other I’m like a fish out of water.

I have difficulties communicating nonverbally and using tone of voice and facial expression in context. I often frown during enjoying conversation because it occurs to me that I need to do something later. I’ll smile while someone is recounting their horrible day because I thought of something that might cheer them up later. Learning to ignore this in favor of the words I am choosing must be difficult when it’s so deeply ingrained right from the beginning that these are the things that tell the real story.

I do my best communicating in the dark, in the shadows where my words are all there are. In the middle of the night I can talk for hours and never skip a beat, the words just pour from my mind in endless waves of consistent thought. Stripped of the uncertainty, the dichotomy between what I say and how I say it, they flow like poetry. Sorted and ordered on paper they start to tell a story untainted by the lies told by my eyes and hands, the honesty of these carefully chosen letters shines through, no longer hidden beneath the grime of mixed signals that mars my every attempt to express myself face to face.

Poor Communication

Today was not a good day when it came to communication. Sometimes I do so well, and other times I fail so horribly. Today was one of those failing horribly days. I have stuff on my mind. Nothing new, I always have stuff on my mind, but today it was kind of stressful stuff and my schedule was throw off because my boyfriend was off work. I don’t blame him, but unfortunately he took the brunt of it as my aggravation shows no matter how hard I try to hide it.

It’s hard not to take it personally. It’s hard to ignore all of the social cues I am giving and just listen to my words, when the general perception I’m giving is irritation. It’s hard to explain that I understand it isn’t his fault, and that I’m not blaming him, when my face is saying I’m angry. Its hard to convince him I’m not upset when everything I’m not saying is telling him I am. So he ends up walking on glass around me which just irritates me more because I can’t explain the way I am really feeling. Round and round and round we go and where we stop no one knows.

Time to get some sleep, more on this tomorrow.

Whispers in the dark

That’s what I’m doing right now isn’t it? Whispering into the dark? No one can see me, and you can only hear me if you pay attention. It’s a defense mechanism. 100%. Its an effective one at that.

I purposely share of myself in a way that only those who really want to hear what I have to say have to listen. I’m constantly worried that I’m boring people, or upsetting people, or keeping people from things they would rather be doing. To compensate for and hide that little anomaly about myself I take a back seat in life, waiting for people to come to me, to let me know they are interested in what I have to say, and only then do I open my mouth.

Even this. No one asked me to write this blog, but it’s like talking in an empty room with the door wide open. If someone walks by and is interested in what I am saying they are free to enter and even join in if they like. I love comments, even the negative ones. They show me people are reading, and give me an insight into what people might enjoy.

This is a struggle for me, and I’m treating this like my diary from day to day, discussing what’s on my mind and trying to organize the way I feel about things. I put it on the web because knowing I’m not alone helps me drastically and I’d like to think I provide the same for at least a few other people. I have gotten an email or two thanking me, so I must be doing something right. For those who aren’t comfortable with that, that’s alright too. I’m glad you are reading anyway.

My mind is running in circles, this is a lot to process in a short amount of time. That mental disorganization sometimes comes across here and if I seem a little inconsistent I apologize, if there is a particular aspect of the blog or type of entry you enjoy let me know and I’ll see what I can do. Otherwise I’m sure the topic or genre will come back around if you watch for it. I express myself constantly and in many ways, but I can be a little spotty about the application. Keeping up with my brain is a full time job that keeps creating backlog.

Cheers.

Stone

I sit at the edge of the night
Watching the frayed bottoms of the curtain rise
Searching for all the missing pieces
That I seem to have left scattered in the wake
Of my tumultuous flight
To reach this precipice

Curled in upon myself I seek warmth
Protection from the cruel winds
That taunt back and forth across my flesh
Screaming in agony for release
Into this, the twilight of my former existence.
I shiver, and I wait, and I watch.

I was beckoned here by the taunts of a childhood best forgotten, these seeds of dismay took hold early and the thorny brambles they grew are too thick for the fragile to pass. I hold them deep inside, protect the hearts of those I love from the true depths of my own depravity, and lie fetal in wonderment as my own imagination threatens to tear my very essence to shreds. But these times I need as well, for the tears I cry are the tears of the Gray of Matha, born of portent and tragedy, and they doom the messenger, my own unrealistic despair. They are the tears of Frigga, and as they pass the portents change, and resurrection can begin. They cleanse my soul of its own poison, and cure my blindness, that I might resume my stolid vigil.

What I watch for has never been clear
A glimpse might peek from the sheltered sky
But lost in the fog of my own solitary confinement
I wait, but not in silence,
Questions echo across the empty span of darkness
Fall back down to shift and swirl about my huddled frame
The scratching of talons on the earths own crust
It calls, and I scream defiance

I lived in this place of denial for many years. Even after I discovered this world I drifted in the unrealistic expectation that I had to be a certain type of person to qualify. I strove for years to mold my personality, convinced early on that my fantasies where just extreme versions of what I really wanted. I have vacant memories that float around my brain, snippets of conversations that once danced circles around my understanding of who I was. Voices that spoke calmly, in deepened tones, as they told me what and who I was. What I needed, what I wanted. They bore a hint of truth and conscious reality, so they never sounded hollow on deafened ears to my own screaming desires. Submit they whispered softly into the cracks of my foundation, and I felt I had no choice but to listen, my own regard so eroded in the swollen waters of their power.

Creeping up from behind they sat
Sharing my space for but the passing of a moment
Eternity in my tiny world, where dark dreams held sway.
The stony façade, the marble iciness of my gaze
Though tempted never strayed
Oaken wisdom, thorny roses, petulant weeds
All tossed and broken in the storm

So I sat alone. Still lost in wonderment at my inability to find my own definition. Each eternity that passed just waking further the demons that danced along the edges of the curtain on the horizon. The one that hinted of wonders, and horrors, and screamed truth loud enough to ring bells in my ears. Their talons crept forward, to rent deep into my flesh, valleys for tears to find passage to the parched and dusty earth that settled where I sat. Alone was far better than the flaccid reminders of what I should be, I should be waiting, and watching, and searching for answers.

When the curtain starts to rise
The edges start to crumble,
Open eyes clenching shut as the light of what has been hidden sears forth
It flashes and falters, for the truth cannot be so clear
Gone again, tears form at the corners of steel blue eyes
Melting stone in their path, fragile flesh exposed
To the twining thorns that twist and flourish around me.

There is no path through me, that was the mistake of lost souls that tried to chip at my base and alter my perceptions. But these thorns did not seek to alter, they twisted and twined and snared me in their embrace, taking nourishment from exposed flesh as it was offered in turn. Each sapping strike bleeds my soul of the doubts and worries that plagued my ideals, and in these thorny brambles I find comfort and solace. Given life in that brief flash of understanding and truth, he continues to grow around me, entwining my soul and making my cry out to feed him the blood of my own pain to sustain the growth of his power.

Stone cannot be bent; it must be chipped away, shed in the light of destiny and the scope of self knowledge that the mind can grasp. The demons still dance at the edge of my awareness, but the raging inferno that tips every thrusting thorn that drives through parchment flesh, tender and weak as it flares and burns in its wake, lends translation to the voices they cast across the opaque distance between fantasy and reality. With the solid wall of his own beasts, reverberating whispers that speak of depth of character and are mortared by protective nature, to bounce from they take on tones of meaning and understanding.

With prodding claws he drags forth my tears
Each searing drop of agony a question lost to wings
They form wider with each strike leading further into the recesses
Twisted realities that lead to a path labeled destruction
By those who care not to heed the warnings
These thoughts are not placid
These raging waters of destruction that persuade me to drown
In seductive images, and terrifying nightmares
Knowing that those thorns that drain me, leaving me helpless in his embrace
Bear also the fundamental ambrosia that grants me life
The vigil continues, but I sit not alone.

Diagnosis

Yesterday my Doctor asked me what I thought getting diagnosed with AS would change about my life. It was an excellent question and it has provoked a lot of thought, because the answer in a nutshell is nothing and everything.

I am aware that when it comes to society as a whole this isn’t going to change things. Knowing why I feel the way I do in social settings doesn’t make it any easier to go out and experience them. The average person isn’t going to go out and do a lot of research about Aspergers, looking for a way to interact with me on my level. Things will continue on as they always have and there will always be misunderstanding in my life. I’m ok with that; I don’t have a lot in common with the vast majority of people and I can see no point in spending my life trying to explain myself to them. Let them think what they want, I am content.

Where this will make a difference is in my one on one interactions with the people whose opinions I do care about, and here it will make all the difference in the world. Just knowing that there is a reason for the way I am has already made a huge impact on my life. I still feel like I live in a parallel universe, but I no longer feel alone here. I feel as though I have found a way to reach across the gap and occasionally pull someone in with me, to see it my way, to listen to what I have to say and view the world from a different perspective. It’s to finally be able to put words to the things I have thought about for so long and not feel like I will be ridiculed and laughed at for feeling the way I do.

Its easy to see where AS has colored my life through the past, and I have been doing far too much thinking about it these last few weeks. Its odd because I have never had a problem with dwelling in the past but this last little while I have been letting it drag me down. Its time to get back to the moment, and right here, right now, things are pretty damn good. I have a boyfriend who is open minded and understanding, a best friend who totally gets where I’m coming from, and a daughter who is a joy to be around at 12 years old. My needs are few and they are all taken care of. I have plenty of time alone to think and do the things I feel the need to do. It took me 30 years but I have reached a place in my life where I am completely content, even the rough patches are no bumpier than anyone else’s. My life isn’t for everyone, or even the vast majority, but then their lives aren’t for me either.

Being diagnosed is providing me with a different perspective, showing me that it’s unrealistic to compare my life to theirs and hope to come to any viable conclusion of good or bad. If nothing else, it’s allowing me to look at things in a new light and see that there is nothing wrong with being exactly who I am.

Troubles Accepting

I almost feel like I need to take a step back here. I know that’s not possible, one can’t just step back from their life and look at their experiences and perceptions from another angle. I’m wholly overwhelmed by this look inside myself and the insights this discovery has given me about my past. In little pieces it all seems to make sense, but when I try and condense it into a bigger picture of the way it makes me feel the edges start crumbling and I am left with nothing but dust once again.

I wanted to provide a guiding light through this, I wanted to light my own way and hoped to show others the path as well. I thought I could accept Asperger’s into my life and continue forward as I always have, one day at a time. It isn’t as easy as I thought and I’ve discovered its much more deeply woven into the core of who I am than I would have thought possible. I never would have guessed in a million years that I have Autism, and reality can be bone crunchingly savage when it hits you out of the blue that way.

In the wake of this struggle, this blog has turned into an expression of the difficulties I’m having in coming to terms with myself, and where I fit into this world that I have fought so hard to stay afloat in. I’m questioning everything about who I am right now and while I don’t think that’s entirely healthy it hasn’t killed me yet and I wouldn’t know how to stop if I wanted to. Perhaps through this baring of my soul I can reach some understanding. A little less confusion in my life would be stellar.

State of Mind

I have to be honest; I can’t do this any other way. I have to admit that I’m frightened of the shadows that lurk at the edges of understanding and acceptance where it was once my solace to hide and wait and watch. Now I’ve hurled myself from the darkness and into the blinding light of the fire where all the weaknesses I fought to smother for so long can be picked apart and scrutinized in the hopes that reassembled these tiny fragments can be stronger as a whole. I feel like a blind man who has learned to see, still fearful of stumbling and falling over the stone blocks that are scattered here and there that I now know are simply features in my garden and not the traps I once thought them to be. I can see them, I know what they are, and yet I can’t help but be wary that another will spring up that I have never seen. There are so many things I couldn’t see before now.

I am at a crossroads, and yet there are no other roads but for the direction I am already traveling. I started on this path a long time ago, and I have gone too far to retrace my steps now to become something other than what I am, a frustrated little girl who is locked in a struggle between wanting her turn for show and tell and fearing the class will laugh when she shares what she has found. Pockets full of sparkling pebbles and bits of beach glass, marbles and pennies, pinecones and buttons; she sits quietly at the back of the class endlessly moving them between her fingertips, hoping against hope that her name isn’t called. Hoping against hope that it is so that maybe she can think about other things and find the rest of the pieces she needs to put herself back together.


My desire to share of myself runs deep and contrary to my inability to take part in this sharing with others. Locked behind this screen of thorns there is a measure of safety, and yet what am I really sharing of myself without that human connection, I may as well be talking to a mirror. I wander through this amazing garden of ideas and thoughts that has always existed in my mind attempting to plot its twists and turns in the hopes that someday I can make the world understand, and yet somehow I know they never will. I can’t shake it, this desire to communicate; it’s the bane of my existence. Few and far between are the people who understand enough to spend time in my world and yet that driving need compels me to throw open the doors to one part or another of my soul and invite the world in, for better or worse. Most end up lost and bewildered in a very short time. Some few understand and respond, and for these I am truly grateful because every single person who understands makes me feel a little less alone.

I have accepted this into my life, but one detail remains, and there it sits again at one detail that locks my mind and my heart into this eternal struggle to define what matters. One person’s opinion and faith in my ability to see inside my own mind in a way that no other could fathom. One heartstring stretched to its limit and the rise and fall of unconditional love left hanging in the balance. One person, what matters their opinion in the grand scheme of things. Nothing, and yet everything when their acceptance is all you have ever wanted. Without it I have no idea how to move on from here.

Out of the darkness

I’ve been struggling for as long as I can remember to explain the world the way I see it. It’s not as easy as it might sound. For a long time I couldn’t figure out why no one understood the things I was trying to explain and so I learned to hide it for fear of being told it was all in my imagination. I would write on scraps of paper, tiny tidbits about the way things looked and felt to me, and hide them inside books and up inside my closet. When I did venture to speak of the way I was feeling I generally found that people did not understand. The frustration of trying to put the pieces together in a way that they could fathom would overwhelm me, and before too long I would be bawling my eyes out. This made me seem over emotional, and granted I was at that exact moment, but it was always a symptom and never the problem. I knew this, but I didn’t know how to explain it to them.

I’m not bitter any more. I was for a long time, but with the knowledge I now possess I can’t have expected them to have any idea what they were dealing with. Aspergers had barely even hit any ones radar and by the time I started exhibiting signs I had learned how to fake it in most situations. The focus has always been on diagnosing the young, and less care was taken with adults; because we have good language skills, and are often highly intelligent it can be difficult to spot. I’m very good at faking it when I have to, I just prefer not to because of the amount of stress it causes me.

There is a common misconception that because people with Aspergers don’t process social cues on an instinctual level that we are not good at reading people. I am sure there are people with Aspergers who struggle with this, but when I am outside of the situation I am exceptionally good at it. I’ve spent my whole life studying people and the way they interact in an effort to be more like them. I have a huge mental database of people I know, situations, and reactions that I can cross reference with relative ease when I am calm and relaxed. There is no pressure when I am a bystander and if my perception is wrong, no risk of reacting in the wrong way. Put me in a situation where I have to take part and all of a sudden it’s a race against the clock to interpret the social cues, and missing just one can spell disaster. The stress of trying to keep up can overwhelm me and cause a short circuit in my database and then I may as well be a fish out of water. The more aggravated the other person gets about my inability to communicate, the worse this gets, until I am in full meltdown mode. I worry about this all the time, its easier to just stay home.

So I do. I stay home and I fixate and I try not to explain myself to too many people. Well at least I used too. With the addition of one new word to my personal dictionary I have discovered the ability to share myself, all of myself. I have found a way to put into words my different perspective of this world we all share. I have found a place where the child in me can roam free in my garden of thoughts, and where the adult can sit and ponder the mysteries of life. I have found a way to throw open the gates and let others pass through the thorny vines that have grown so long and so fierce about this gilded cage. I have found the freedom to be me. Out of the darkness I created for myself, the perceived safety of my imagination, and into the light. The fires have been stoked; all that’s left to do is explore the shadows in the safety of its glow.