At the bottom

Every once in awhile I have to spend some time at the bottom of the well. Its like my body needs time to remember what its like to be sad so it can appreciate the good times and decides to stop producing those happy drugs altogether and I’m left in a rut I just don’t know how to get out of. I can’t sleep, I can’t think, I can’t communicate with any degree of effectiveness. All I can do is do my very best to live through it and hope that it will be over soon, that I can go to sleep one night and wake up the next day to a brighter world.

I think the hardest part of it is the effect it has on those I care most about. I don’t like being a burden but it’s hard to be anything else to those I can’t hide this from. The guilt I feel for having a negative impact on their lives at these times only compounds the way I feel. I feel like I should crawl into a hole somewhere and hide away from everyone until it passes but I can’t, and they see, and they worry, and the whole thing goes around in a big circle. I can accept what it does to me, I have a much harder time accepting what it does to them.

I feel like I should have better control, like if I could just look at this from the right angle I could make it do away, so I poke and I prod and I try to make it all make sense. Emotions rarely make sense, I don’t even know why I try. I know I should just ride it out, cry when I need to, sleep when I can, but that’s so much harder to do when there are other people to take into consideration. I’m stuck in a struggle between what I need to do to feel better, and what I need to do to keep them happy, and I really have no control over the outcome. I can try to smother it down but it will all build up in the long run and eventually overflow, eventually they will see, I can only keep it hidden so long and the longer I do the worse it is in the long run.

I know it will pass, I just wish it would pass faster so I can get back to living my life.

Words

Words are all I have, especially at times like there when nothing else seems to make any sense. 26 letters strung together in endless combinations that paint a picture of who I am, and what I offer, and where I fit into this confusing world. My tone betrays me, my eyes lie, my face denies the truth, but my words never do. They march on across these pages with nary a care for the tears that might roll down my face or the furrowed brow that signals irritation. Here my words carry more weight than the way I say them. Here it all makes sense.

As unpredictable as I find the world, I know that I am the same. Taught through social conditioning to search for the hidden meaning behind the things people say, the delivery has come to mean more than the words themselves, and delivery is something I fall pathetically short at. In a society where body language and social cues are such an integral part of the way we interpret each other I’m like a fish out of water.

I have difficulties communicating nonverbally and using tone of voice and facial expression in context. I often frown during enjoying conversation because it occurs to me that I need to do something later. I’ll smile while someone is recounting their horrible day because I thought of something that might cheer them up later. Learning to ignore this in favor of the words I am choosing must be difficult when it’s so deeply ingrained right from the beginning that these are the things that tell the real story.

I do my best communicating in the dark, in the shadows where my words are all there are. In the middle of the night I can talk for hours and never skip a beat, the words just pour from my mind in endless waves of consistent thought. Stripped of the uncertainty, the dichotomy between what I say and how I say it, they flow like poetry. Sorted and ordered on paper they start to tell a story untainted by the lies told by my eyes and hands, the honesty of these carefully chosen letters shines through, no longer hidden beneath the grime of mixed signals that mars my every attempt to express myself face to face.

Whispers in the dark

That’s what I’m doing right now isn’t it? Whispering into the dark? No one can see me, and you can only hear me if you pay attention. It’s a defense mechanism. 100%. Its an effective one at that.

I purposely share of myself in a way that only those who really want to hear what I have to say have to listen. I’m constantly worried that I’m boring people, or upsetting people, or keeping people from things they would rather be doing. To compensate for and hide that little anomaly about myself I take a back seat in life, waiting for people to come to me, to let me know they are interested in what I have to say, and only then do I open my mouth.

Even this. No one asked me to write this blog, but it’s like talking in an empty room with the door wide open. If someone walks by and is interested in what I am saying they are free to enter and even join in if they like. I love comments, even the negative ones. They show me people are reading, and give me an insight into what people might enjoy.

This is a struggle for me, and I’m treating this like my diary from day to day, discussing what’s on my mind and trying to organize the way I feel about things. I put it on the web because knowing I’m not alone helps me drastically and I’d like to think I provide the same for at least a few other people. I have gotten an email or two thanking me, so I must be doing something right. For those who aren’t comfortable with that, that’s alright too. I’m glad you are reading anyway.

My mind is running in circles, this is a lot to process in a short amount of time. That mental disorganization sometimes comes across here and if I seem a little inconsistent I apologize, if there is a particular aspect of the blog or type of entry you enjoy let me know and I’ll see what I can do. Otherwise I’m sure the topic or genre will come back around if you watch for it. I express myself constantly and in many ways, but I can be a little spotty about the application. Keeping up with my brain is a full time job that keeps creating backlog.

Cheers.

Suffering From Judgment

Floating around on youtube this morning I came across a video discussing how we do not suffer from Asperger’s we suffer from society.

This is something I have thought about many times over the years, even before being diagnosed with AS. I have never suffered from my differences, only from the judgment of others about the value of those differences. When held up in contrast to their own needs my life seems hollow and disconnected and so it’s easy for them to jump to the conclusion that there must be something wrong with me. They fail to see how full and rich it is when compared to my own desires.

30 years of being told there is something wrong with you takes its toll, and I feel it through secondary mental disorders. As time passed and I was increasingly expected to take part in society as a “normal” person I developed anxiety and a social phobia. Although I don’t imagine I would have either of these were it not for AS in my life, I’m quite certain they are not a symptom of the AS itself but rather a symptom of societies reaction to my differences. The social phobia is almost a benefit now; I feel much less guilt about my inability to function in the outside world when I’m not making constant attempts to do it. Still I hear on a regular basis that this is no way to live my life, that there must be something wrong, that I ought to be looking for a cure.

Am I angry about it? Not really, I cannot blame the vast majority for not knowing any better, it is after all not something they have been prompted to think about. Those that should know better but don’t are another story, but I am happy to know their true character and even more happy to leave them out of my life. I just think it would be a vast improvement if people stopped trying to decide what was “right” for everyone else.

Altered Reality

I sit and wonder impossible things. Impossible questions with impossible answers that are impossible to find. It’s no wonder I feel like I’m running in circles, panting and heaving with each labored step to get where? Nowhere except right back here where I started, staring at my own bitter reflection, that warped perception with no face that I embrace and hold dear. It shatters under the pressure of so many hands tugging it this way and that towards their own definitions. No care for the not so fragile doll, suddenly porcelain under their scrutiny, searching for flaws in the already crackled veneer of what they taught her to be. I don’t understand how it can be easier to live on their side of the mirror.

Clarity they say, and common sense, naught but hurled remnants of ages long past that drift to the bottom of the muddy waters that surround them, social conditioning that has no basis in reality. Not clear, clarifying, but crimson with the tears of bleeding hearts and opaque to muddle and blind, if only they could see. I can’t save them from passionate denial, when all I have to offer is words, and to open my mouth I risk the flood pouring forth, to sear them where they stand for their damning accusations of reality and misguided fantasy. Even now I fail to understand the world beyond the glass, its perceptions seems so warped it overwhelms me. I’m a catalyst with no voice beyond a whisper trapped between here and there. Nothing but these groups of letters that fall from my fingertips.

I seem to exist in a world they can’t even imagine, at the edges of their reality, their existence, where they glide endlessly through life on magic carpets fueled by the dishonest truth, kept company by a golem in my likeness, though I long ago fled the safe womb of that chrysalis. I fight my way through rabid jungle that seems so calm and serene from their lofty perch, where the wind barely graces the tops of the trees with its gentle kiss. The reality of who I am exists only in their dreams, where they can cast hideous denials back in the face of my defiant screams, and find succor in their heated delusions that I am like them at all.

I am not who they expect, not who they see when they deign to cast enlightened eyes my way. The reality flows just beneath that brittle veneer, one that could not hold under the gaze of a closer look, a blessing then that they choose not to, their cool apathy the glue that holds its cracked and worn fragments as my disguise. Deaf eyes and blinded ears. Where, I wonder, did they learn not to trust their senses. Common sense in the face of the truth that it is neither common nor sensible at all. The intensity of their lives makes my head swim and no matter how strong you are, treading water is always a losing battle. Any wonder that I choose to exist in my world rather than theirs; they make the same choice every day.

State of Mind

I have to be honest; I can’t do this any other way. I have to admit that I’m frightened of the shadows that lurk at the edges of understanding and acceptance where it was once my solace to hide and wait and watch. Now I’ve hurled myself from the darkness and into the blinding light of the fire where all the weaknesses I fought to smother for so long can be picked apart and scrutinized in the hopes that reassembled these tiny fragments can be stronger as a whole. I feel like a blind man who has learned to see, still fearful of stumbling and falling over the stone blocks that are scattered here and there that I now know are simply features in my garden and not the traps I once thought them to be. I can see them, I know what they are, and yet I can’t help but be wary that another will spring up that I have never seen. There are so many things I couldn’t see before now.

I am at a crossroads, and yet there are no other roads but for the direction I am already traveling. I started on this path a long time ago, and I have gone too far to retrace my steps now to become something other than what I am, a frustrated little girl who is locked in a struggle between wanting her turn for show and tell and fearing the class will laugh when she shares what she has found. Pockets full of sparkling pebbles and bits of beach glass, marbles and pennies, pinecones and buttons; she sits quietly at the back of the class endlessly moving them between her fingertips, hoping against hope that her name isn’t called. Hoping against hope that it is so that maybe she can think about other things and find the rest of the pieces she needs to put herself back together.


My desire to share of myself runs deep and contrary to my inability to take part in this sharing with others. Locked behind this screen of thorns there is a measure of safety, and yet what am I really sharing of myself without that human connection, I may as well be talking to a mirror. I wander through this amazing garden of ideas and thoughts that has always existed in my mind attempting to plot its twists and turns in the hopes that someday I can make the world understand, and yet somehow I know they never will. I can’t shake it, this desire to communicate; it’s the bane of my existence. Few and far between are the people who understand enough to spend time in my world and yet that driving need compels me to throw open the doors to one part or another of my soul and invite the world in, for better or worse. Most end up lost and bewildered in a very short time. Some few understand and respond, and for these I am truly grateful because every single person who understands makes me feel a little less alone.

I have accepted this into my life, but one detail remains, and there it sits again at one detail that locks my mind and my heart into this eternal struggle to define what matters. One person’s opinion and faith in my ability to see inside my own mind in a way that no other could fathom. One heartstring stretched to its limit and the rise and fall of unconditional love left hanging in the balance. One person, what matters their opinion in the grand scheme of things. Nothing, and yet everything when their acceptance is all you have ever wanted. Without it I have no idea how to move on from here.