First things first, I suppose a little introduction is in order. They usually make me uncomfortable but since we don’t have to guess who is going to go first this should be a little easier. Besides, there is nothing in this world I know more about than myself, the hard part will be keeping this short and sweet. I am 30 years old, and I just discovered a few weeks ago that I have Asperger's Syndrome. In the grand scheme of things this doesn’t change anything, I’m still exactly the same person I was before I figured out why I am so different, and yet at the microscopic level at which I examine myself it’s monumental. This has given me something I have searched my whole life for, perspective. I have found my voice. I hope to help others find theirs. Welcome to my world.
Showing posts with label open mind. Show all posts
Showing posts with label open mind. Show all posts

Tuesday, December 4, 2007

Whispers in the dark

That’s what I’m doing right now isn’t it? Whispering into the dark? No one can see me, and you can only hear me if you pay attention. It’s a defense mechanism. 100%. Its an effective one at that.

I purposely share of myself in a way that only those who really want to hear what I have to say have to listen. I’m constantly worried that I’m boring people, or upsetting people, or keeping people from things they would rather be doing. To compensate for and hide that little anomaly about myself I take a back seat in life, waiting for people to come to me, to let me know they are interested in what I have to say, and only then do I open my mouth.

Even this. No one asked me to write this blog, but it’s like talking in an empty room with the door wide open. If someone walks by and is interested in what I am saying they are free to enter and even join in if they like. I love comments, even the negative ones. They show me people are reading, and give me an insight into what people might enjoy.

This is a struggle for me, and I’m treating this like my diary from day to day, discussing what’s on my mind and trying to organize the way I feel about things. I put it on the web because knowing I’m not alone helps me drastically and I’d like to think I provide the same for at least a few other people. I have gotten an email or two thanking me, so I must be doing something right. For those who aren’t comfortable with that, that’s alright too. I’m glad you are reading anyway.

My mind is running in circles, this is a lot to process in a short amount of time. That mental disorganization sometimes comes across here and if I seem a little inconsistent I apologize, if there is a particular aspect of the blog or type of entry you enjoy let me know and I’ll see what I can do. Otherwise I’m sure the topic or genre will come back around if you watch for it. I express myself constantly and in many ways, but I can be a little spotty about the application. Keeping up with my brain is a full time job that keeps creating backlog.

Cheers.

Sunday, December 2, 2007

Masochism

Although this diagnosis of Asperger’s is new to my life, the self evaluation and discovery that has gone along with it is a story as old as I am. I’ve always been seeking the deeper meanings and hidden answers and this isn’t the first time that the things I have discovered about myself have raised eyebrows and had people thinking that there must be something wrong with me. When I tell people I’m a masochist I get the same reaction.

There is an epidemic in our world that for some reason no one seems to see. Its an epidemic of misinformation and it plays a deciding role in the amount of discrimination and ignorance that people are running up against every day of their lives. Google masochist and see what you find, a startling array of articles and definitions proclaiming masochism to be a mental disorder characterized by a pervasive pattern of self defeating behavior, and while I admit there are those out there like this, its these types of blanket diagnosis that contribute to the misunderstanding I suffer from. Things are rarely black and white in reality the way they are on paper.

No one stops to consider that maybe it’s a combination of mental and/or emotional disorders that contribute to some masochists behaving this way. I am a masochist without self defeating personality disorder.

Saying I like pain is a lousy way to describe it. While I have a high tolerance for it, pain is pain and it hurts. What I do like about it is the rush of endorphins and adrenaline my body produces in response to the physical and emotional trauma I am putting it through. When it comes down to it I’m nothing more than an adrenaline junkie who is too smart to jump out of an airplane and knows that its better to throw it into a cocktail with some yummy endorphins to kick start the effect. No one is out there insisting all snowboarders are in need of psychiatric evaluation, or that bungee jumpers are just trying to cover up emotional pain.

By now some of you are wondering, do I hurt myself? Do I let other people hurt me? The answer is once again not so black and white, it depends on the situation. I went from poking at scrapes as a kid to artistic cutting and wax as a teenager. I prefer, at this stage in my life, to have someone else do the hurting for me. Now, before you jump to conclusions, I am not out roaming the streets at night dressed like a slut hoping someone will attack me. Remember what I said up there about being too smart to jump out of an airplane? I take my personal safety very seriously, and this is no exception. I’m very careful about who I will let hurt me, but what a wonderful surprise to find out that there was another side to this coin. I have a wonderful sadist in my life.

You see, while the amount of pain I can cause myself takes the edge off the desire, satiation is hard to achieve. My bodies natural defence mechanisms kick into full gear way too soon and I have to remain present to continue. Take that power out of my hands and put it into the hands of another and suddenly I can ride the way it makes me feel. Ultimately I am safe, he isn’t going to do anything I can’t get up and function from in very short order, but the uncertainty of not knowing how far he will push this time or what he will do next plays tricks on my mind and floods my body with my drugs of choice. Knowing he gets off on hurting me just adds the emotional twist of lime that finishes it off perfectly.

There is a side of this no one sees, the mutual trust and respect that’s required to engage in these activities, or the communication that takes place about every aspect of this in our lives. This isn’t something that’s entered into lightly, it takes a vast amount of understanding about both yourself and the other person to take things to the level we do, and the risk is as much his as mine. People express their concerns for my safety and, while I understand that they are just worried, it’s insulting because it expresses a lack of confidence in my intelligence and strength.

Just as insulting, in fact, as considering my having Asperger’s a disability.

Wednesday, November 28, 2007

Suffering From Judgment

Floating around on youtube this morning I came across a video discussing how we do not suffer from Asperger’s we suffer from society.

This is something I have thought about many times over the years, even before being diagnosed with AS. I have never suffered from my differences, only from the judgment of others about the value of those differences. When held up in contrast to their own needs my life seems hollow and disconnected and so it’s easy for them to jump to the conclusion that there must be something wrong with me. They fail to see how full and rich it is when compared to my own desires.

30 years of being told there is something wrong with you takes its toll, and I feel it through secondary mental disorders. As time passed and I was increasingly expected to take part in society as a “normal” person I developed anxiety and a social phobia. Although I don’t imagine I would have either of these were it not for AS in my life, I’m quite certain they are not a symptom of the AS itself but rather a symptom of societies reaction to my differences. The social phobia is almost a benefit now; I feel much less guilt about my inability to function in the outside world when I’m not making constant attempts to do it. Still I hear on a regular basis that this is no way to live my life, that there must be something wrong, that I ought to be looking for a cure.

Am I angry about it? Not really, I cannot blame the vast majority for not knowing any better, it is after all not something they have been prompted to think about. Those that should know better but don’t are another story, but I am happy to know their true character and even more happy to leave them out of my life. I just think it would be a vast improvement if people stopped trying to decide what was “right” for everyone else.

Thursday, November 22, 2007

Normal vs Sane

What is normal but a figment of their warped imaginations? It doesn’t exist in my world, never has, despite the endless times it’s been thrown at my feet. They tried to throw it at me but it never stuck, how could I be something that doesn’t exist. I may as well try to be a unicorn or a dragon for all the good it would do me. I can’t be anything other than what I am, and try as I might I will never master the magic of transformation. I tried and I failed before I learned how to mimic their cries and let them come flocking to what they wanted to see, I’ve forgotten now how to do even that. Not that I care.

I refuse to pretend, I’ve spent my life pretending and I don’t think it’s too much to ask for my loved ones to accept me for who I am. I know it isn’t for most, the ones who already knew about my world and love me and would never ask me to change, but I worry about the rest. Will the social stigma Autism get the best of them? Will they crumble beneath the pressure of the media to find a cure? Will they stop seeing me for the person I am in the face of what they see as a disease? Or will they open their minds and their hearts and see the truth about the girl standing in front of them and all she has to offer? I don’t know, I can’t predict how they will react, I don’t understand them at all. It seems so easy to me. Stop trying to change the things you have no control over and just accept reality into your life.

I’m not hurting anyone, hiding away in my little world. I don’t pose any threat by remaining peripheral from all those but the few who will meet me half way. I could wish for the ability to expand this close circle, I could visualize it in my mind, but still I would open my eyes to find that the power is not mine to make their choices and all that remains are my whispers and the hope that they will hear them. One little voice saying that trying to be normal is counterproductive to remaining sane. You may as well try being a unicorn, or a dragon, for all the good it will do you.

Wednesday, November 21, 2007

Opening Minds

I’m not going to cry, I’m not going to whimper, I’m not ever going to let a lone tear roll tracks down my dusty cheeks. I won’t let the world know the pain they cause, the scars that cut through my soul, marring the edges of my very spirit, and leaving me crying in agony on the inside. A cold face is all they will receive in return. Their cruel taunts will pass my ears with the speed of a wave, crashing against the rocks, and yet will not wear me down. My strength is moored in the lines of the earth, and the energy that sustains it runs through my bones as well. Laughter may echo across the lands of my mind, but my own can join it in harmony, and soon the mocking shall fade, no power without consent. I won’t let them see the shattered webbing of the core that is created, when laughing minds refuse to see the truth, when the sheep inside their hearts follow blind along paths of destruction.

The fear that rocks my being is one for them alone, and yet they will never understand this, for the weight of the world rests in their hands, and the power of it makes them gluttonous. Wrapped deep within layers and layers of gauzing, cushioned from the damage they cause themselves, and everyone else in the process, my heart still weeps but I won’t let them see. If they opened their eyes, saw the lines in between, walked the tunnels with lamps instead of blindly floundering on, then the world might last forever. Takes but a moment to ask the questions that provide illumination for this journey of ours, and the light a single one may cast can light the way for countless others who follow in their wake. But no, some people fear the light, and the knowledge it may bring, that in the glare of the truth they might find they their perspectives a little warped. So they hide behind Ire, and claim to have a greater understanding of the world at large, when all they can really see is the walls they have created in their own little reality.

True bravery takes a step outside that door, those walls of safety and comfort, to see the world from the eyes of another. Why won’t I cry? Whimper? Because it would make no difference, cruel eyes would just flash and call it weakness. They would jump to conclusions, assuming they hurt me, that the wounds that appear across the flesh of my soul are theirs. But they belong to humanity, romantic as it is, for these people will mean the end of the earth, Armageddon, Ragnorak, if they don’t learn to listen to the greater songs that are the energy of us all. Why embrace anger, when acceptance comes easier, why embrace hate when the heart wants to learn. Why claim understanding before even listening. Open your mind and embrace clarity.