That’s what I’m doing right now isn’t it? Whispering into the dark? No one can see me, and you can only hear me if you pay attention. It’s a defense mechanism. 100%. Its an effective one at that.
I purposely share of myself in a way that only those who really want to hear what I have to say have to listen. I’m constantly worried that I’m boring people, or upsetting people, or keeping people from things they would rather be doing. To compensate for and hide that little anomaly about myself I take a back seat in life, waiting for people to come to me, to let me know they are interested in what I have to say, and only then do I open my mouth.
Even this. No one asked me to write this blog, but it’s like talking in an empty room with the door wide open. If someone walks by and is interested in what I am saying they are free to enter and even join in if they like. I love comments, even the negative ones. They show me people are reading, and give me an insight into what people might enjoy.
This is a struggle for me, and I’m treating this like my diary from day to day, discussing what’s on my mind and trying to organize the way I feel about things. I put it on the web because knowing I’m not alone helps me drastically and I’d like to think I provide the same for at least a few other people. I have gotten an email or two thanking me, so I must be doing something right. For those who aren’t comfortable with that, that’s alright too. I’m glad you are reading anyway.
My mind is running in circles, this is a lot to process in a short amount of time. That mental disorganization sometimes comes across here and if I seem a little inconsistent I apologize, if there is a particular aspect of the blog or type of entry you enjoy let me know and I’ll see what I can do. Otherwise I’m sure the topic or genre will come back around if you watch for it. I express myself constantly and in many ways, but I can be a little spotty about the application. Keeping up with my brain is a full time job that keeps creating backlog.
Cheers.
Tuesday, December 4, 2007
Whispers in the dark
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9:51 AM
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Labels: acceptance, Adult, asperger's, blog, communicate, communication, connection, content, coping, creative, life, my world, open mind, perspective, poetry, strength, struggle
Sunday, December 2, 2007
Masochism
Although this diagnosis of Asperger’s is new to my life, the self evaluation and discovery that has gone along with it is a story as old as I am. I’ve always been seeking the deeper meanings and hidden answers and this isn’t the first time that the things I have discovered about myself have raised eyebrows and had people thinking that there must be something wrong with me. When I tell people I’m a masochist I get the same reaction.
There is an epidemic in our world that for some reason no one seems to see. Its an epidemic of misinformation and it plays a deciding role in the amount of discrimination and ignorance that people are running up against every day of their lives. Google masochist and see what you find, a startling array of articles and definitions proclaiming masochism to be a mental disorder characterized by a pervasive pattern of self defeating behavior, and while I admit there are those out there like this, its these types of blanket diagnosis that contribute to the misunderstanding I suffer from. Things are rarely black and white in reality the way they are on paper.
No one stops to consider that maybe it’s a combination of mental and/or emotional disorders that contribute to some masochists behaving this way. I am a masochist without self defeating personality disorder.
Saying I like pain is a lousy way to describe it. While I have a high tolerance for it, pain is pain and it hurts. What I do like about it is the rush of endorphins and adrenaline my body produces in response to the physical and emotional trauma I am putting it through. When it comes down to it I’m nothing more than an adrenaline junkie who is too smart to jump out of an airplane and knows that its better to throw it into a cocktail with some yummy endorphins to kick start the effect. No one is out there insisting all snowboarders are in need of psychiatric evaluation, or that bungee jumpers are just trying to cover up emotional pain.
By now some of you are wondering, do I hurt myself? Do I let other people hurt me? The answer is once again not so black and white, it depends on the situation. I went from poking at scrapes as a kid to artistic cutting and wax as a teenager. I prefer, at this stage in my life, to have someone else do the hurting for me. Now, before you jump to conclusions, I am not out roaming the streets at night dressed like a slut hoping someone will attack me. Remember what I said up there about being too smart to jump out of an airplane? I take my personal safety very seriously, and this is no exception. I’m very careful about who I will let hurt me, but what a wonderful surprise to find out that there was another side to this coin. I have a wonderful sadist in my life.
You see, while the amount of pain I can cause myself takes the edge off the desire, satiation is hard to achieve. My bodies natural defence mechanisms kick into full gear way too soon and I have to remain present to continue. Take that power out of my hands and put it into the hands of another and suddenly I can ride the way it makes me feel. Ultimately I am safe, he isn’t going to do anything I can’t get up and function from in very short order, but the uncertainty of not knowing how far he will push this time or what he will do next plays tricks on my mind and floods my body with my drugs of choice. Knowing he gets off on hurting me just adds the emotional twist of lime that finishes it off perfectly.
There is a side of this no one sees, the mutual trust and respect that’s required to engage in these activities, or the communication that takes place about every aspect of this in our lives. This isn’t something that’s entered into lightly, it takes a vast amount of understanding about both yourself and the other person to take things to the level we do, and the risk is as much his as mine. People express their concerns for my safety and, while I understand that they are just worried, it’s insulting because it expresses a lack of confidence in my intelligence and strength.
Just as insulting, in fact, as considering my having Asperger’s a disability.
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alei
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10:36 AM
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Labels: acceptance, Adult, anti curebie, Aspergers, awareness, content, happy, hurt, masochist, narcissist, open mind, pain, reality, sane, search, self, strength, truth, understanding
Saturday, December 1, 2007
The "cure" for my "problem"
I’m baffled by the concepts of normal, and typical, and common sense that isn’t common and doesn’t often make any sense at all. I don’t understand the world’s propensity towards dishonesty and untruth. “Honest to a fault” is the most ludicrous thing I have ever heard. Whose fault are we talking about here and why does the truth need to be anyone’s fault at all? Why can’t the truth just be what it is? I spend my life asking these questions, and haven’t found an answer yet.
The only way to achieve balance in my life is by being honest with myself and the people around me about who I am and what I need. I tried bluffing, I tried faking it, I tried pretending I was just like the rest of them. I tried and failed, but I tried and succeeded with surprising frequency as well, only to return home still overwhelmed and miserable in the long run, drug down by the pressures of the role I was playing day after day after day. I tried to be someone I wasn’t for the sake of the mass majority that they could continue to be comfortable in their idea of what was right and normal and the best thing for everybody, but the truth still sang beneath the surface until my ears rang with its echo and my head pounded to its rhythm. The inside of my head was a raging storm of confusion as I tried to make my needs meet the standards of a world that thought I was getting by just fine. Interesting that now, as I have reached calm and balance, they think there is something wrong with me that needs to be remedied. I’ve found the cure, and they are still confused about the problem.
The only disabling thing I suffer from is judgment, the rest of my life is calm and peaceful and I’m quite content with what I have. That’s more than can be said for most people out there trying to “make it in the real world”. If I sought a cure for who I am, the things that form my personality, what would be left? What would it matter if I could enjoy having more friends if all of the things my real friends love about me were lost in the process? I have spent 30 years in self evaluation to get myself to a point where I have all the things I need to make me happy and content in my day to day life and what would be the point in throwing all of that away in order to have things I don’t really want in the first place. Really, they ought to stop trying to cure me, and start trying to accept me. It’s much more within their realm of influence.
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11:07 AM
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Labels: acceptance, Adult, answers, anti curebie, Aspergers, autism, awareness, content, faking, fulfill, missing, normal, overwhelmed, perception, perspective, society, strength, truth, understanding
Tuesday, November 27, 2007
Diagnosis
Yesterday my Doctor asked me what I thought getting diagnosed with AS would change about my life. It was an excellent question and it has provoked a lot of thought, because the answer in a nutshell is nothing and everything.
I am aware that when it comes to society as a whole this isn’t going to change things. Knowing why I feel the way I do in social settings doesn’t make it any easier to go out and experience them. The average person isn’t going to go out and do a lot of research about Aspergers, looking for a way to interact with me on my level. Things will continue on as they always have and there will always be misunderstanding in my life. I’m ok with that; I don’t have a lot in common with the vast majority of people and I can see no point in spending my life trying to explain myself to them. Let them think what they want, I am content.
Where this will make a difference is in my one on one interactions with the people whose opinions I do care about, and here it will make all the difference in the world. Just knowing that there is a reason for the way I am has already made a huge impact on my life. I still feel like I live in a parallel universe, but I no longer feel alone here. I feel as though I have found a way to reach across the gap and occasionally pull someone in with me, to see it my way, to listen to what I have to say and view the world from a different perspective. It’s to finally be able to put words to the things I have thought about for so long and not feel like I will be ridiculed and laughed at for feeling the way I do.
Its easy to see where AS has colored my life through the past, and I have been doing far too much thinking about it these last few weeks. Its odd because I have never had a problem with dwelling in the past but this last little while I have been letting it drag me down. Its time to get back to the moment, and right here, right now, things are pretty damn good. I have a boyfriend who is open minded and understanding, a best friend who totally gets where I’m coming from, and a daughter who is a joy to be around at 12 years old. My needs are few and they are all taken care of. I have plenty of time alone to think and do the things I feel the need to do. It took me 30 years but I have reached a place in my life where I am completely content, even the rough patches are no bumpier than anyone else’s. My life isn’t for everyone, or even the vast majority, but then their lives aren’t for me either.
Being diagnosed is providing me with a different perspective, showing me that it’s unrealistic to compare my life to theirs and hope to come to any viable conclusion of good or bad. If nothing else, it’s allowing me to look at things in a new light and see that there is nothing wrong with being exactly who I am.
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Labels: acceptance, Adult, answers, asperger's, autism, caring, communication, content, diagnosis, perspective, understanding